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Excerpt from blackdoctor.org
Advocating for your child’s health can mean the difference between managing symptoms and finally seeking to cure his or her disease. Deborah Cromer is all too familiar, and her child was first in line for a new treatment seeking to cure sickle cell disease.
This past May, her 12-year-old son, Kendric received his first treatment of LYFGENIA, a gene therapy that would help his body rebuild more robust blood cells. Kendric went into his treatment with trepidation, uncertain of what life would look like on the other side.
He recalls, “I didn’t know what life would be like without sickle cell. I didn’t know if I wanted the treatment, but I couldn’t let sickle cell define me as a person.”
